Board of Directors

Mike Bartenhagen

Board President

Mike is the father of three children.  His son Broc was diagnosed with Infantile Spasms in July of 2002 and since that time Mike has been
very active in the world of infantile spasms.

 

Erin McCann

Board of Directors

 

 

Danielle Hamilton Folz

Board of Directors

Danielle and her husband, Jonathan, haven't always lived in Rhode Island with their three offspring. Prior to Trevor's birth and subsequent Infantile Spasms diagnosis in 2007, they lived among and served the people of Tanzania, East Africa. Danielle's heart has always been towards service and advocacy.

 

Danielle is currently a domestic engineer (aka Stay-At-Home-Mom). She spends her energy home educating her two oldest children, being Trevor's biggest cheer leader, seeing far too many specialists and splitting an ungodly amount of pills. She has also served on parent advisory committees at both the state and community levels and volunteers for several local organizations, including co-founding the first Special Olympics program in her community. Through their family's journey with catastrophic epilepsy, which included many mountains and valleys, Danielle's passion for supporting other families touched by Infantile Spasms has continued to blossom. 

 

Kelly Slattery, Esq.

Board of Directors

 

 

Feeling overwhelmed with the diagnosis of Infantile Spasms?

 

Email us, we are here to help  support@iscommunity.org
 

This site was designed with the
.com
website builder. Create your website today.
Start Now